NPPACT is a multi-disciplinary group of stakeholders committed to advocating for federal programs, investments, and policies, which will help ensure smoother care transitions to support adults living with serious, life-threatening, and disabling conditions that were initially diagnosed, treated, and managed in childhood. Other common policy areas of interest could include training for and access to adult care providers, insurance coverage for adult care, supporting expanded telehealth flexibilities, and increasing funding for research into best practices.
Co-Chairs
Diana Gray, MA
President and Chief Executive Officer
Hydrocephalus Association
Sara Struwe, MPA
President and Chief Executive Officer
Spina Bifida Association